well?

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well?

Postby georgy » Fri Aug 04, 2006 6:18 pm

What on earth can we do about all this? My fiance even notices a difference. Fatigue, more swelling, less not allowed drive! How sad is that? You would think someone could come up with something to relieve all of this!
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Postby patoco » Sat Aug 05, 2006 8:08 am

Hi Georgy

It really takes a combination of things to help.

The daily wrapping, doing self decongestive therapy, even having a healthy diet and trying to get exercise.

Be sure to try and get enough rest which can help on the energy. I also give my body a boost with vitamins which include a b complex and antioxidant vitamins.

All part of a over-all lifestyle that when combined really can make a difference.

Research is picking up, Georgy. I am confident that within a few years there are going to be major breakthroughs. There is even intensive research going on with genetic therapy; gene therapy to help the body "regrow" lymphatics.

Pat
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Postby silkie » Mon Aug 07, 2006 6:11 am

Hi Georgy

Fatigue pacing you day , not rushing trying to do everything at once
little breaks. All helps

I think the MLD helps to keep you brighter getting the toxins out of the body each day help the fatigue and the fluid makes movement a lot easier.

not allowed drive i think a lot of it has to do with how you feel
if you don't feel good about yourself how do you feel sexy so the self esteem has to be worked on as well .

and when day, and the self esteem is high and everything is good

have a wonderful time, Quality is much better than quantity
Enjoy the moment

Hugsssssssssssssssssssss

Silks xxxxxxxxxxxx(sexier than ever )
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Postby coyote » Sun Aug 13, 2006 5:36 am

silks...you are a riot! sexier than ever???? so cool! I have felt anything but sexy in the last couple of years, so you always surprise me with stuff like that!

Georgy, I have a lot of fatigue and near-zero not allowed drive. I have found that it definately takes as much emotional wortk, for me, as it does in taking care of myself and maintain my LE. I do thngs in increments now and pace myself because I cannot stay awake a lot of times for more than a couple of hours at a time, then sometimes it's like I get a second wind (which would be what is going on now). Just learn your rhythms and work with them, don't try to force your body to do what it can't, that just makes it harder on yourself.

chin up, with MLD, it does get better!
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Postby silkie » Sun Aug 13, 2006 6:34 am

Hi Julie

Sure why not sexy I love making ME feel good

It is all about my self esteem

Its all about me feeling wonderful

I have lymphedema its taken a lot of living with and many things i cant do now

But Its not takng my smile and my eyes they can still sparkle with fun

theres more to being sexy than the size of your bottom and your other bits

maybe its just me still making the effort even when i have wraps on or supports. makes me feel good and alive


like im always saying I think i am worth the effort

Silks xxxxxxxxxxxxxxxxxxxxxxxxx
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Postby coyote » Sun Aug 13, 2006 4:37 pm

that you are silks, that you are (worht it)!

and, I'd forgotten how much of an anti-depressant you are: Too bad you can't bottle the stuff! :D You make me smile!
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Postby silkie » Sun Aug 20, 2006 2:50 pm

Hi Julie,

I have my off days to. sometimes i even climb the walls

Then i ring up my friend Mandy say i need a girls day

oh then were off on a GIRLS DAY last week we went out

i spen only a few pounds i bought some lacy undies for no ones benefit but mine make me feel good hey you know what i feel real good in them lol

i keep remembering my mum she would always say put pretty undies on just in case you have an accident loll what a reason but you know

it applies to us always were pretty undies makes you feel good


Hugsssssssssssssssssssssssss

Silks xxxxxxxxxxxxxxxx


and yes you can get them for our sizes
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silkie
 
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Postby joanne johnson » Mon Aug 21, 2006 10:11 am

Silkie,
Maybe that is how you got that unique nickname from wearing those fancy sexy undies! In our local mall we have a store called Victoria's Secret that sells beautiful feminine underclothes. Whenever I look around I think now if they sew a few of these together it might work for me. Still don't know what Victoria's secret might be...

Have a wonderful day. I always look forward to reading your posts as they are always clever! :lol:
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Postby silkie » Mon Aug 21, 2006 12:34 pm

Hi Joanne

Nooooooooo My name is my own not because of the undies
i was born silk always been my name but i think it suits lol

I can get them in the uk on the larger ladies stores

they even do thongs now even i dont go that far lol

the french ones are nice

just the sexy supports wish they could be a little more lacy!!!

maybe i can adapt them a few bows, lollllllllllllllllllllllll I AM GONA DO IT

ill do a pic lolllllllllllllllllllllllllllllllllllll WATCH THIS SPACE

Hey coyote you wanna pair

Hugssssssssssssssssssss

Silks (struttin her stuff )xxxxxxxxxxxxxxxx
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Postby patoco » Mon Aug 21, 2006 12:52 pm

Ladies...ladies :oops: :oops: :oops: :P

You're liable to ruin my innocence with all this talk :lol:

Hmmm....seems like I've heard of Victoria's secret.... :mrgreen: :!: :!:

Pat :wink:
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Postby silkie » Mon Aug 21, 2006 2:40 pm

Hiya Pat

I am so sorry i forgot all about the male establishment

I know let me make ammends

I will put lace on your supports to if you like :lol:

Hugssssssssssssssss

Silkie xxxxxxxx
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silkie
 
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Postby joyous » Tue Aug 22, 2006 1:06 pm

Silk, I would love a few pairs of the special undies and yes I feel real good on Friday night when I went out to a club (men's) with my girl friend I had a great time best time I had in a very long time and I feel sexy with the guys.

and I don't believe Pat is :oops: :oops: :oops: He loves when us girls get together and talk about things like that - so he can remember his younger days when he would look at girls.

Gregory, It will pass your not allowed drive will come back - just keep watching or looking at your girl friend.

joy
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